One of the things I have desperately missed over the past several years is our summer vacations in Cape May, New Jersey with our good friends, Joel and Jane Lubin. It was our tradition for nine years, until the energy drain and logistics of travelling with ALS made our rendezvous too difficult. By the summer of 2009, I had regained enough strength, energy and emotional balance to spark interest in trying to resurrect our tradition. After some intense investigation into managing equipment and access to buildings, however, it turned out that Joel and Jane’s vacation house in Virginia was a longer ride but a much more manageable alternative. It was the longest trip we had made in almost four years, but worth every minute. In their typical loving and supportive way, Joel and Jane did everything imaginable to ensure my comfort, safety and access during the five days of our visit. Jane also made sure that I had all the organic produce needed to stay on track with my diet plan, and Joel handled personal care when my aide, Jimmy, took his afternoon walks.
So, instead of watching the porpoises frolic in the surf while sunning ourselves on the beach at Cape May, we watched birds in the backyard while relaxing in their sunroom. We also took in the vistas and wildlife of Shenandoah National Park while driving along the Blue Ridge Parkway. In place of the Victorian architecture of Cape May, we enjoyed the gardens and surroundings at the Glen Burnie House in the Museum of the Shenandoah Valley, and learned more about the area’s history. We ate well, watched movies, talked, and most importantly, thoroughly enjoyed each other’s company. It is hard to find the words to adequately describe how uplifting and enjoyable it was to be able to spend extended quality time with them, and we are planning a return to Virginia next month.
Making this summer even more special, we renewed our rendezvous in Cape May this past weekend. We enjoyed meals together, took in the Victorian ambiance, strolled the boardwalk, and even caught a glimpse of a porpoise or two. Thanks to improvements in my health and the outstanding care and support from Jimmy, my wife, Diane, and Jane and Joel, Cape May has re-entered my life. It is one more example of things that have become possible again as I continue recovering from ALS.
Today is my 60th birthday, an event I never thought I would live to see back in 2003, when a doctor concluded that amyotrophic lateral sclerosis was the reason my right leg had been growing steadily weaker for three years. Refusing to accept the doctor’s belief that ALS must always end in death, I struck off in pursuit of alternative healing. After four years of experimenting, healing strategies that help began to emerge. My purpose in writing this blog is to share with fellow PALS (persons with ALS) what has worked for me, and to provide examples for anyone of how perseverance and positive thinking can help in dealing with overwhelming challenges. My recovery is far from complete, but I grow more confident each day that it is within reach. A recent article in a local newspaper portrays me as someone who is beating the odds. If you’re interested, you can find the article, "Local man with Lou Gehrig's disease beating odds", at : http://www.mycentraljersey.com/apps/pbcs.dll/article?AID=20106220302
As always, your comments are appreciated. What examples can you share of how perseverance and positive thinking have turned your nightmares into miracles?